Finding Hope in Waiting: Strategies for Managing Treatment Delays
Published on:
July 1, 2024
What have you been diagnosed with?
Rheumatoid Arthritis (RA), Chronic Pain, Migraine Headache
How did you first notice something was wrong with your health?
[I experienced] Pain.
When did you first start experiencing symptoms?
2 years ago
How did you go about seeking a diagnosis?
[I tried consulting] Doctors.
How long did it take for you to receive a diagnosis?
3 months
How did you feel when you received your diagnosis?
[I felt] Relief.
How did you communicate your diagnosis with your loved ones?
Explaining my pain.
What treatments have you undergone and how have they impacted you?
Steroid injections; NSAIDS
What is the most difficult part of your treatment, and how do you manage it?
Waiting for it to take effect. I managed it by reminding myself that the treatment / therapy will take effect soon.
What has been the most challenging aspect of living with your condition?
The constant pain
“Be kind, for everyone you meet is fighting a battle you know nothing about.”
How has your daily life and routine been affected by your condition?
I’m not able to do a lot of physical activities any longer.
How has your condition affected your mental health and emotional well-being?
I feel frustrated and depressed at times.
What strategies have you found helpful for managing your emotions and thoughts?
Looking for aversions, i.e. watching tv
How has your diagnosis impacted your relationships with your friends and family?
From the outside I look like I’m fine but I have to explain the chronic pain I feel all the time.
What support systems have been helpful during your health journey?
My family and my healthcare provider
What advice would you give to your past self if you had the opportunity to go back in time?
Maintain a healthy diet and body
How can others be more supportive and understanding of people with your condition?
Not to judge - you don’t know what others are going through
Looking for support and resources for Rheumatoid Arthritis? Click here: https://www.arthritis.org/
Want to find out moreabout Chronic Pain? Click here: https://edition.cnn.com/2023/05/16/health/chronic-pain-study/index.html
Are you a chronic disease warrior, or know someone who is? We would love to hear your story! Contact us at marketing@jonda.io to find out more about how to get featured on Jonda’s Patient Voices. Let's inspire and educate others facing similar challenges by sharing our unique health journeys and raising awareness, together.
Disclaimer: Please be aware that the content of this patient story is solely the viewpoint of the individual(s) involved and should not be considered as medical advice.
