Patient voices from around the world
Every story is different. But they all have one thing in common: the challenge of living with a medical condition.
Living with Chronic Illness: Balancing Missed Opportunities and Managing Conditions
I can no longer work nor live by myself. I used to work full time as a Dental Assistant and Receptionist for a Dentist office and live with three roommates. Last May I had to quit my job & move back in with my parents as my conditions were worsening and I could no longer sustain a 'normal' life.
A Tale of Two Diagnoses: How Autism and HSAN Shaped My Journey to Understanding
It took 19 years to get an official diagnosis of HSAN (hereditary sensory and autonomic neuropathies) because of several years of misdiagnoses but things were different since I was born and my autism was the main diagnosis I had in my childhood.
Shaping Change Through Challenges: My Life with Spinal Muscular Atrophy Type 3
“I had symptoms as a child, but they were never picked up. I had knee issues so they always said that nothing could be done until I was 18 and that I would need surgery. This prevented any diagnosis of some of the more pressing issues…”
Unveiling the Invisible: My Journey with Ankylosing Spondylitis and Hashimoto's Disease
“I went to multiple physicians. In the beginning, all the doctors told me it was "all in my head" and that nothing was wrong with me. As a physician myself, it was crushing that none of the doctors took my symptoms seriously initially…”
