Unveiling the Invisible: My Journey with Ankylosing Spondylitis and Hashimoto's Disease

How long did it take for you to receive a diagnosis?

It took 5 years to get a diagnosis.

How did you feel when you received your diagnosis?

I was in shock. It's not a diagnosis I wanted to receive, yet at the same time, I was grateful to finally know what was wrong with me so that I could finally do something about it.

What treatments have you undergone and how have they impacted you?

I'm on a biologic for my Ankylosing Spondylitis. I was initially on Humira and have been switched to Simponi. Thanks to the biologic and necessary lifestyle changes, I'm a lot better today. I'm incredibly grateful to my amazing rheumatologist.

What is the most difficult part of your treatment, and how do you manage it?

As a physician, this is embarrassing to say... but the part I hate the most is injecting myself. Even though I've done it countless times, I always need to psyche myself up to do it.

What has been the most challenging aspect of living with your condition?

Having to manage my lifestyle, which includes what food I eat. I'm on a gluten-free, sugar-free and low-FODMAP diet. As disciplined as I try to be, it's tough cause I wish I could just be like a normal person and eat whatever I want. Going to a bakery and smelling freshly baked croissants that I can't eat is, is rough.

“All the doctors told me it was "all in my head" and that nothing was wrong with me.”

How has your daily life and routine been affected by your condition?

I listen to my body. I know when I need to rest and take time out. I also make a conscious effort to walk for at least 30 min every day as movement is incredibly important for someone with Ankylosing Spondylitis.

How has your diagnosis impacted your relationships with your friends and family?

My relationships with my friends and family have only gotten stronger. They are my support system and I'm lucky to have them.

What support systems have been helpful during your health journey?

My friends and my family have been incredibly important on this journey. My rheumatologist and personal trainer have also played a significant role in providing additional support.

What advice would you give to someone who has recently been diagnosed with your condition?

Make sure you have a good support system around you. Do your research to understand your condition better. Make the lifestyle changes you can make to help you better manage your health.

How can others be more supportive and understanding of people with your condition?

By not putting their limiting beliefs on me in terms of what I can and cannot do, because of my condition. I'm a person that has Ankylosing Spondylitis. I'm not Ankylosing Spondylitis.

‍Looking for support and resources as a fellow Ankylosing Spondylitis warrior? Click here.

Want to find out more about Hashimoto’s Disease? Click here.

Donate to the National Arthritis Foundation in Singapore, here.

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Are you a chronic disease warrior, or know someone who is? We would love to hear your story! Contact us at marketing@jonda.io to find out more about how to get featured on Jonda’s Patient Voices. Let's inspire and educate others facing similar challenges by sharing our unique health journeys and raising awareness, together.

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Disclaimer: Please be aware that the content of this patient story, is solely the viewpoint of the individual(s) involved and should not be considered as medical advice.